Breast cancer lesson 155: Why the end of active treatment can be the start of something beautiful

If you’d asked me on January 1 to predict how 2014 would have played out, I probably would have focused on the wedding planning and guest list writing. Little did I know, however, that the lump I had found by chance in my right breast on Christmas Eve – and written off as nothing – would change not just my 2014, but the rest of my life.

I would be lying if I said the last nine months have been easy. Two biopsies, lots of tumours, one major operation, one new boob, one surgically-flattened stomach, one course of IVF, seven embryos, four and a half months of chemo, six Zoladex injections, 24 immunity boosting injections, three tattoos, 15 radio blastings and a pharmacy load of pills does not a honeymoon make (I won’t even count the needles and the hospital appointments)!

But, the truth is, when I think back over this period of active treatment, I don’t see pain, I just see happiness. I have been turned inside out and put back together again and I am still smiling. It is not something I would have ever wished upon myself, but I have looked for the positives and found them in abundance.

As I see it, 2013 was the year I got cancer – the year that tried to take my life away. 2014 is the year I got my life back. And what a life it is!

Cancer has taught me so much – some of which I am still processing. But, the three things I am thinking about right now as I leave the hospital for the last time (for a good three weeks, which is a big deal) are these:

1) A life without the people who make you smile is no life at all: this world is full of beautiful people. And If you don’t agree, you’re not spending time in the right company. Just look at the face of a charity runner with the name of the person they’re running for on their back. Come to my house and see the wall of cards and messages that greet me as I come down the stairs each day. Have a look at my inbox! I will be forever grateful for the support, kindness and generosity shown by all those around me – from thoughtful old school friends and supportive colleagues, to amazing uni friends and new friends united by this challenging disease. I have made so many beautiful memories with beautiful friends this year and I feel truly blessed to have you all in my life. Thanks also to the kind strangers. Whether it’s a wonderful lady making PICC line covers in America, a designer drawing bespoke boob logos on my bed beanies, a nurse making me last in recovery or a hospital caterer offering me extra biscuits, I will never forget the smiles brought about by every act of kindness I have received. Here’s to more memory making (and more photographic evidence) in the next chapter. And more pink hearts of course!

2) I am who I am because of my imperfections: I have never loved my body before, because society is designed to insist I shouldn’t. But, I have learned to love what cancer has chosen to leave behind and I couldn’t be happier with what I see staring back at me in the mirror. My scars are still angry, my boob is still covered in cling film to stop the skin peeling off, I can’t feel my hands and feet and I may never be able to give birth to a child. You could say my body is broken, but I think I am stronger than ever. The mirror doesn’t remind me of cancer, it reminds me of just how far I have come in my life. I’m here and I’m smiling – and that’s all that matters.

3) Happiness is about making the best of every day and enjoying the everyday: when Duncan proposed to me I was so happy. At last we would get to have our big day. Now, I realise that it is wrong to focus on the ‘big’ days years in the future. Why dream about one day, when you can seek happiness every day. I am nearly at the end of my #100happydays project, and when I look at the photos I have posted I don’t see many huge milestones (today being one giant exception). I see home-grown veg, freshly-baked cake, moments with friends, a new ink cartridge in an old pen and a sunny day. I love what I see when I wake up in the morning and I know that life’s details – not special occasions – are what help us bank happiness. And, we all need to bank happiness, because we don’t know what’s round the corner. I fully intend to seize each and every day – and I hope you will too.

A few weeks after my diagnosis, Duncan turned to me and said he was sad that he had proposed to me. This wasn’t because he no longer wanted to marry me, but because he was sad to think that one of life’s loveliest milestones (one I had been pestering him about for years) had been tinged with sadness.

It didn’t take him long, however, to change his view. In asking me to marry him, he gave me hope. He gave me hope for a future of happy days in his company. And that is one of the greatest gifts I will ever receive. I will treasure every moment sat on the sofa, every moment walking through the park and every moment waking up at home with his face smiling back at me.

Thank you. Thank you for every word, every message, every hug, every square of chocolate and every flower. Thank you for believing in me and encouraging me the see the positives. Thank you for getting up early on a Sunday morning to run for charity, for sponsoring me and for donating pledges. Thank you for going out of your way for me. Thank you for making me the person I am today. If you’re really looking for somebody inspirational, I urge you to take one long look in your own mirror! Thank you.

This is it. This is day I have dreamed out. I can’t believe it’s here, but I am off to make the most of it!

Cheers.

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Breast cancer lesson 154: Believe you can and you’re halfway there

What makes a great Sunday? Giant boob costumes, pink headbands, a cling-filmed rads-blasted boob, running shoes, a dose of determination and a celebratory pub lunch that’s what!

Yep, that’s right. We completed the 10k. And, with balloon-filled boobs on our backs, we did it in style.

Thinking back to yesterday’s aims, I am glad to report I finished in one piece with no missing body parts and we (by which I mean Fran, Sam and I as Duncan was up with the ‘running elite’) shaved off 12 minutes from the chemo run time. I think it’s fair to say when I pushed for the finish (I even had a bit left in the tank after three hills) imagining all of the amazing people fighting cancer on a daily basis – and all of those who have supported my fight – I couldn’t have been happier.

Thank you for believing in me, running with me and pledging drinks to help me raise money for such an amazing cause. I couldn’t have done it without you!

This is one finish line I won’t ever forget. Just one more active treatment finish line to go… tomorrow.

One sleep to go!!!!!!!!!!!!!!!!!!!!!!!

Here’s the photographic evidence:

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Breast cancer lesson 153: The race to the finish is on!

It really is hard to explain quite how excited I am right now. You might think this strange given it is the evening before my next 10k (that means an early night and no Saturday wine), my skin is starting to look very angry and I have just discovered that the loss of sensation and general tingling feeling in my hands and feet (otherwise known as peripheral neuropathy) might be here to stay for a good six months if yesterday’s review meeting is anything to go by. But, just knowing that I have two massive finish lines to cross over the next two days makes me very happy indeed.

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I confess, I had a slight blip yesterday at my review meeting. After joking with the team doing the treatment for the day, I was ushered into a room to talk through aftercare following my last blast. It started well due to the fact I was dressed in a complicated top that took me ages to get off while I was trying to hold a sensible conversation. (I just had to laugh in the end as the surreptitious tugging on the sleeves to try and get them over my hands just didn’t work.) Once out of my top, we talked creams (you need to keep the Doublebase going for as long as you have symptoms and for at least two weeks), swimming (seems I might be able to take my first swim in a month if the skin holds), peripheral neuropathy (it seems I still have no one to talk to about this currently and it might be here to stay), Tamoxifen (as I haven’t been consented for this yet, no one in the department can prescribe the drug for me, so I have a few weeks reprieve before the 10-year course begins) and the 10k (she has given me some medical cling film to attach to my boob and under my arm to prevent the friction from causing my skin to fall off).

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Then, she mentioned the future. For the first time, a medical professional was sat in front of me telling me this was the end. There would be no more frequent appointments to make me feel like I am fighting any rogue cancer gremlins in my body. There will be no one close by if I have a ‘what if’ wobble. From Monday, I will be just another hospital number on the system, already replaced with another patient starting their journey. I should have been jumping for joy. Instead, when someone is looking across at you with tears in their eyes telling you it’s ok to cry, I felt a little sad. It wasn’t a lasting sadness (I welled up a bit but recovered well), just a realisation that the protective bubble of surgeons, nurses and doctors is about to burst. And, it won’t be long before I will be left alone to face the future, with just a packet of pills for company.

The thing is, I know I’m ready for the future. I am excited about the future. I am strong enough to face the future. And, I know I will never be alone, thanks to the sheer volume of amazing people around me. I am also delighted to be giving waiting rooms a wide berth for a few weeks at least. I guess I just wish this appointment had been less about uncertainty and sadness and more about congratulating me on a job well done. I would have preferred an ‘I did it’ sticker, a pat on the back and a big smile rather than a reminder that the end is not really the end and that the road ahead could actually turn out to be a little bumpy.

The way I am choosing to say goodbye to active treatment and hello to a cancer-free life, however, doesn’t require a consulting room. Firstly, given there won’t be fireworks or even a lolly or star sticker from the hospital (and it is a Monday as well, which makes it feel even less special), I have taken it upon myself to mark the occasion with an end-of-active-treatment present to self. I have heard of people buying shoes, bags and cars to celebrate the fact they are being allowed to get off the cancer conveyor belt, but I have opted for something practical and meaningful to me: a decent pair of trainers.

I am not sure my old pair should have really been taken round the block, let alone the streets of London in July. So, I promised myself, if I made it across that finish line, I would get a pair that wouldn’t break my feet. I bought them a month or so ago to break them in before the big race tomorrow and I do feel I have been bouncing rather than jogging around the park of late. When I put them on, I feel like I am giving my feet a big hug – and that’s got to be a good thing.

The buying of running shoes is also quite significant for me. Running deserves its very own chapter in my cancer story. Anyone who has ever taken to the road (park, trail, path etc) will know that indescribable rush that comes with completing a run/jog/walk. It is that feeling that has helped me greet each day with a smile. And, it is that feeling I want to carry with me forever. I believe a run can change a day for the better. And, my future is all about having a better life. I never thought my hips and the toxic drugs in my body would ever let me be a runner. I am so grateful to my body for giving me that chance.

These shoes are also a reminder that whatever finish line it is you need to cross, you will get there. But, you should focus on making the journey as comfortable as possible, so you enjoy every step of the way.

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Tomorrow, the aim is to 1) finish in one piece with cling film in tact and skin and nails still on 2) Raise money for the amazing charity Coppafeel 3) celebrate the end of cancer and the beginning of a healthier life with friends 4) shave even one second off the chemo run time and 5) cross the finish line with a big smile on my face. If you’d still like to pledge to buy me a drink to celebrate the end of active treatment (for each pledge I get I will donate to charity) or sponsor me, please post here!

When I cross that finish line tomorrow I cross it for everyone who has joined me on this journey. This serious illness may have tested me to the limit, but I think I will always look back on this time as one incredible ride.

All I need now is an early night and then a bit of banana fuel in the morning!

Wherever you are in the world, I hope you’ll be cheering us (by which I mean, Duncan, Fran and Sam) on!

As an aside, I will leave you with a rather amusing exchange with the shop assistant at the local supermarket a moment ago (on my mission for bananas). It went a bit like this:

Assistant: ‘How are you doing?’

Me: ‘Really well thanks’

Assistant: ‘And, how is your day going?

Me: ‘I am having a good day. Thanks for asking’

Assistant: ‘Really?’

Me: ‘Really!’

Assistant: ‘But, you do have a disease right?’ [points to lack of hair]

Me: ‘Ah yes, that would be cancer treatment. Nearly over now.’

Assistant: ‘I knew it! You’re a star.’

Seems I can’t even buy my magic running-fuel bananas in peace!

Breast cancer lesson 152: Ten post-treatment ‘firsts’ guaranteed to raise a smile

When I experienced my first proper shower post PICC line removal (no radioactive-looking arm sleeve in sight) and actually tasted my first glass of red since chemo, I started to see just how amazing some of life’s simple pleasures can be when you’ve been deprived of them for a while.

Now I am not saying I will be jumping for the joy at the sight of a shower for the rest of my life – although I do really like a good shower. But, I know that first proper shower is just one of many ‘firsts’ I get to enjoy now that treatment is coming to an end. It may sound strange, but I feel blessed in many ways that have the opportunity to rediscover certain aspects of life that I just assumed I’d take for granted forever.

So here’s my post-cancer list of ten things I cannot wait to experience once more!

The first shampoo: None of this scalp massaging stuff with a bar of hard soap, I am talking a proper lather on proper hair, which needs a lot of washing out! Showers are just too short at the moment and I have nowhere to put my conditioner!

The first brush: When I had hair so long I could sit on it (admittedly only if I leaned my head back), I used to love having other people brush my hair (this was a long time ago). Apparently, 100 strokes make it lovely and glossy (and maybe a bit greasy from all that brushing). There is nothing quite like the feeling of a brush gliding through your hair (or not if your hair is in knots). I love it and I miss it. In fact, the only thing I don’t miss is having to carry one around. Rumour has it my hair may grow back thicker. I am certainly hoping not as it ressembled rope before it fell out.

The first haircut: Ok, bear with me, these aren’t all hair related. Oh, how wonderful it will be to sink into the hairdresser’s chair and ask for someone to actually style my fluff! I will take a lifetime of ‘bed hair’ moments just to be able to look in the mirror and have a say in what is going on up top! It seems my ‘bob’ cut of the last four years is out if your emails and messages are anything to go by!

The first swim: This won’t just be any swim. When I get the all clear from my radio treatment (they suggest about six weeks from the last blast to make sure your skin doesn’t have a reaction to the chemicals in the pool), I will be dipping a toe into the Olympic pool. I think my days in open water might be numbered, but I can’t wait to feel my arms move through the water. It will be another tick on the Brighter Life List too!

The first period: Not something I thought would ever make it onto a list of things I actually want to see, but when you haven’t had one since March and, having one means you are not condemned to an eternal menopause (trust me, you wouldn’t want that), it will actually be a great day ‘if’ or ‘when’ it arrives. Sadly, this is the only thing I know may never return. I’d like to think I’d be more prepared for this first period than the last (was very young and walking round Avebury with my family so not great timing). But, I guess it will be as unexpected.

The first appointment-free month: Having spent the best part of the last month in hospital, I must confess, I am a little over appointments. I have three check-ups scheduled for October (including a trip to the hip surgeon and a discussion about nipples, which should be interesting), so am thinking November could be my month. My diary will look empty for once!

The first day you no longer look like a cancer patient: While I do find the ‘leaving the house’ routine easy at the moment, it would be wonderful to sit on a train and not see pity/sympathy/empathy/sadness/[insert appropriate emotion here] in the eyes of fellow passengers. Even in London, I don’t feel I have as many opportunities to blend in to the background at will. I’m happy, but that isn’t something you can announce to passengers daily, so they smile along rather than assuming my life is falling apart. Also, cancer is cruel in that you often look worse when the treatment is over – just at the time everyone just wants things to get back to normal. I’d like to look in the mirror to apply cream, not have a reminder of the last nine months.

The first mascara-wearing day: Now, I am not a great wearer of make-up as readers of this blog will no doubt know. But, I love mascara. Midnight blue is my favourite and I do often feel a bit naked without it (of course, that was before I discovered how naked you feel without eyelashes). I don’t change it as often as they say, but I might just treat myself to a new one when the lashes start to come back. Here’s hoping that isn’t too long!

The first proper lie-in: those menopausal symptoms are persistent. So much so that the hot flushes (combined with peripheral neuropathy from Tax) still mean bed is not something to be treasured just yet. The more I sleep, the worse the neuropathy is. Providing Tamoxifen doesn’t keep those menopausal symptoms going for the next decade (and providing my nerve endings start to play ball once more) I’d like to think might get a lie-in sometime before Christmas!

The first drug-free day: Given I am still on Clonidine and will be by the time the Tamoxifen starts, this day is a long way off. I will be 42 (at the earliest if we take a baby break in five years or so), so that is a good ten years of pill popping to go. But, what a day that will be! I won’t be wishing my life away just yet, but I will be happy giving my body a break from all things toxic. Maybe though it will be like dying your hair. It will be so long since my body has experienced a life without pills, it won’t know what normal really is any more. Here’s hoping coming off it doesn’t mean I go straight into a natural menopause!

Yes, the future may be filled with uncertainty. Yes, it will take me a long time to trust my body again – although I still believe it wanted me to find that lump on Christmas Eve before it was too late. But, whatever big things await me, I can be certain of one thing – there are plenty of little things that will keep me from thinking about it.

Now, the question is, what ‘first’ will come first? I am betting on the shampoo!

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Breast cancer lesson 151: Smile and the world will smile with you

As I made my way to the Royal Albert Hall last night to tick off yet another challenge on my Brighter Life List, I started thinking not about just how lucky I am to be reaching the finish line, but about all the people that are about to get started.

It is a cruel fact of life that as one of us walks out of those hospital doors occupied with thoughts of a new normal, someone is walking in. I guess that’s why those doors are revolving!

I was reminded of this fact not because I was about to enjoy a rare evening out, but because I had been fiddling with my travelcard wallet. I appreciate it’s not usually an object to inspire such thinking, but this wallet is no ordinary wallet. Tucked inside are quotes and messages sent to me over the years by my amazing dad. He always knows how to make me smile even though he is miles away. Aside from the occasional loaded highlighter markings that accompanied my bank statements when he used to send them to me at university, I have treasured each one of my dad’s clippings and motivational post-it notes.

So, I’d like to share one with you today. It’s not profound. It’s not Booker Prize prose. It looks like a tatty scrap of paper because it has been travelling with me for years. But it makes me smile every time I read it.

This is for everyone facing up to challenges in their life – cancer or no cancer. Life is hard and, smiling when you’re faced with the biggest challenges it can throw at you makes it even harder. But, life can also be beautiful too.

‘Smiling is infectious, you catch it like the flu,
When someone smiled at me today, I started smiling too.
I passed around the corner and someone saw my grin,
When he smiled, I realised I’d passed it on to him.
I thought about that smile then I realised its worth –
A single smile just like mine could travel round the earth.
So, if you feel a smile begin, don’t leave it undetected,
Let’s start an epidemic quick, and get the world infected.’

Now that’s one epidemic of which I want to be a part!

I have been reading a bit of the Dalai Lama of late in my attempt to find out more about theories of happiness. I love what he says about suffering and the fact that, if we spend our lives trying to find ways to remove it, we will be hit harder when it finds its way in. Because guaranteed, it will always find its way in. He believes that if we accept the inevitability of human suffering, we will be happier. I do believe that, and I also believe that happiness and suffering do not sit at either end of life’s colourful and challenging spectrum.

Whatever you are facing, think not of the day the suffering will end, but of all the ways you can smile your way through it today. It often feels hard to find happiness, but trust me, there is more than enough of it to go around!

I’m smiling, and I have a date with a linear accelerator (only three left to go)!

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Breast cancer lesson 150: Ten things that will never taste the same again because of cancer

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Today I did a little dance after standing on the bathroom scales (a rare event I grant you). That’s because today, one month after the official end of chemo, I have returned to my pre-surgery weight. Thanks to jugs of water (with a squeeze of lemon), bran-based breakfasts, run/jog/walks around Greenwich Park and, yes, the odd comfort cake, I have space in my jeans once more and a great big smile on my face.

When I think back over my food choices over the last nine months, I can’t help but laugh. With my love of water, tea, fish, meat, cheese, bread, biscuits and cake, I have always been fairly predictable. Daring for me is throwing balsamic on the courgettes! Add in a fair few helpings of jelly babies, pints of lemonade and ginger biscuits thanks to chemo, however, and you could argue my diet had started to resemble that of faddy child. Not perfect timing when you consider our garden has been more productive than ever this year (although I am making up for it now by working my way through our tomatoes).

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With the chemo cravings a distant memory, I would like to be able to say order has been restored once more. But, that’s not quite true. For starters, my tastebuds are in overdrive. Everything feels like an explosion of flavour in my mouth.

Amazingly, I have even started savouring my food rather than racing the clear the plate. Whether this slow down will continue remains to be seen, but I will enjoy it (and its impact on my digestive system) as long as it lasts. It is a wonderful feeling to enjoy every mouthful and I’m convinced everything tastes better (although that might have something to do with the fact it couldn’t possibly taste worse).

Of course, when people talk about food and cancer, thoughts immediately turn to chemo – aka, the tastebud stealer. And yes, while it does make a pretty big impression on the dinner plate, it is not the only treatment and life-changing event to alter my view of certain foodstuffs.

So, here are ten things I know will never taste the same again (heightened tastebuds or not).

And, the good news is, it’s not all bad…

1) Chocolate: I have always had a weakness for chocolate and, dare I say it, the cheaper stuff usually (Dairy Milk and Twirl, with a bit of Green and Black’s vanilla chocolate thrown in). Now, every time I even look at a bit of chocolate, I am reminded of the chocolate hampers and treats that arrived in the mail to help me pile on a few pounds before surgery. That chocolate made my new boob possible and I will be forever grateful for it. I had never eaten a Hotel Chocolat chocolate before in my life. Now, I could probably describe the entire range! It was a bit dangerous creating a chocolate cupboard in the house, so while Duncan and I started to think of it as an essential nightly ritual, the new waistline wasn’t quite so sure. There is a little chocolate in the house now, but don’t tell Duncan, because he doesn’t know where it is :-).

2) Mashed potato: Oh, NHS, why is it that your mashed potato tastes so good? I never wish to eat your toast for breakfast again, but your smooth creamy mash is amazing. I appreciate the morphine may have had something to do with it!

3) Bananas: Ok, so they don’t have quite the same impact as they would on that comic book character Bananaman, but now I’ve taken up running (as an act of defiance against this dreaded disease), when I’ve eaten a banana, I feel like my legs could power on forever. Of course, I haven’t actually gone further than a 10k to test this theory, but I will always have a soft spot for this fruity fuel and its ability to get my round Greenwich Park.

4) Anything with ginger in:
I never used to understand why people got so excited about ginger. When you go in search of the ultimate ginger chemo cookie, however, this little ingredient does take on a whole new meaning! I think Delia’s ginger nut recipe is still a personal favourite, but I have enjoyed my journey through everything from gingerbread to ginger syrup cake. That doesn’t mean I’ll be stealing your ginger chocolate any time soon mum, so don’t worry.

5) Grapes: I love grapes, but I certainly won’t be freezing them again any time soon! The freezing idea was a way of eating fruit, while simultaneously trying to cool the mouth in the chemo chair to reduce that cycle’s side effects. I think it is fair to say it was as worthwhile as wearing sunglasses in a darkened room.

6) Ribena: Before cancer, I used to associate Ribena with my great aunt, who likes to drink it warm because she (shock horror) doesn’t do tea. Having been my ‘water’ for the entire chemo period, however, it is now sitting proudly in the fridge waiting to be diluted once more. It is incredibly sweet and it does remind me of the drug epirubicin, which isn’t ideal. But, if I drink it with my eyes shut, everything is ok.

7) Wine: I will never forget my first flavoursome sip of wine when my tastebuds reappeared for the last time on chemo cycle six. I was in a restaurant in Padstow and the lady serving us poured a small glass for me to try (no point buying it if I can’t taste it). It was magical. Acidic wine (the more acidic the better), was a friend on chemo. It isn’t a friend any more. I am also glad to say that red wine has been reintroduced once more. It had a bit part in my chemo story. I couldn’t taste it at all, but a glass before each blood test did help those levels (this is not a recommendation)!

8) Ice lollies: For me, ice lollies have always been a real sign of summer (my favourite being the Strawberry Mivvi, which I have avoided of late). Sadly, I think those days are gone. I did have a fruit pastille lolly in Cornwall, but it was for medicinal purposes. When you’ve craved them constantly for months as a way of shocking the tastebuds into action, they don’t quite have the same appeal. Oh well, best stick to farm ice cream and waffle cornets in future. It’s a hard life.

9) Bread: I never want to remember the peanut butter on toast chemo moment that felt like my mouth was being welded together with superglue and cardboard. Now the subtle flavours of bread are once again present in my life, however, I don’t think I will ever take them for granted again. Beautiful crusts, fluffy light rolls and floury baps, I love you all! I am thoroughly enjoying my ‘year without buying sliced bread’ challenge! 

10) Eggs: If all I had to eat for the rest of my life were eggs (with cheese of course), I would be a happy lady. That’s why I was excited when a friend recommended Nigella’s Eggs in purgatory meal. Trouble is, I love it so much, I think I ate it about 40 times during the chemo months. We are, as you can imagine, on a bit of a break right now.

In truth, nothing will ever taste the same again.

And, you know what? I wouldn’t have it any other way.

Breast cancer lesson 149: Ten things breast cancer has taught me that I never thought I’d ever need to know

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As I begin my last full week of active treatment (the end is now just a week away), I have started to reflect on the last nine months and the impact this unbelievable chapter has had on my life.

I think it is fair to say I have discovered an awful lot about myself and life in general as my body has been systematically destroyed and put back together again. I will be sharing these life lessons here over the coming months, but I thought I’d start by looking back on the things I never thought I’d ever need to know!

It’s amazing how we can move through life completely unaware of the intricacies of a certain topic or illness. Then, something changes, and we are required to become an instant expert. Back in lesson number 32 I remember describing the language of breast cancer as something not dissimilar to school. With talk of grades, stages and examinations, all I was missing was a satchel and a uniform (unless a backless gown counts)!

Beyond the booklets and the cancer glossaries, however, there are other learnings for which no amount of reading can prepare you. It’s true that I never thought I’d need to know these things, but, in a funny sort of way, I’m rather glad I do. It makes me cherish the bits of my body I still have that little bit more – and reminds me just how wonderful the human body really is.

Here’s my top ten (trust me, there are many many more). Consider this my alternative breast cancer guide!

1) Tummy fat is pretty intelligent: Top of the list has to be the fact that your tummy fat, wherever it is positioned on your body, never forgets its origins. Hard to believe unless you see it in action! I have been losing weight since the end of chemo so I am evening up a bit now! I must confess, tummy fat is a lot better looking up top.

2) Arranging an appointment to see the Orthotist is like signing up for a spy mission: I will never forget the day I got a voice message from the patient appliances department that was so cryptic (along the lines of ‘Miss Scully, we think you know why we’re calling, so please get in touch to book in a time’, I had no idea what appointment I needed to call to arrange. Starting the call with: ‘I think you want to see me, but am not entirely sure why’ is not something you do every day. I should also add, I had never before heard of an Orthotist. Such mystery all to fit me with a wig!

3) Cancer gives you tattoos: I didn’t think a serious illness would make me a rebel. Now the proud owner of three tattoos for radiotherapy alignment purposes, I am no stranger to a bit of inking. Now all I have to do is wait for my final tattoo when I get my nipple back!

4) Losing your hair downstairs makes peeing in a straight line pretty tricky: if you’ve asked me a year ago whether I would feel comfortable discussing weeing tactics at all, let alone publically, I would have laughed out loud. Now, pretty much anything goes. Try it ladies and you just tell me if don’t agree!

5) Being bald can be brilliant: getting acquainted with my bald head is one of the most liberating things I have ever experienced. While I would never wish to watch the clumps fall into the sink again, I am now pretty comfortable with my head shape and am still loving the ease with which I can get ready for the day. Silky smooth legs are also a bonus! Just wish the nose hair would return quickly.

6) Leeches may be used in breast reconstruction surgery: thankfully, these little beasties didn’t make an appearance in my cancer story, but I was slightly shocked to hear they might. Apparently they can help encourage blood flow if the new boob starts to struggle. This was a bit of oversharing on the part of the nurse prepping me gift surgery!

7) Tea can taste bad: I thought I would never see the day I would decline a cup of tea. Lose your tastebuds, however, and it’s one of the first things to go. I guess I also thought I couldn’t love tea more than I did. Getting my tastebuds back, however, has given me a whole new appreciation for the brown stuff! Rediscovering herbal teas (the smell is still a bit potent) may take a little longer.

8) A saline flush tastes like mouldy oranges – and that orange-flavoured laxative drink they give you doesn’t taste like oranges at all: it would be fair to say, I will never look at an orange the same way again. I still love them, but don’t be surprised if I run out the room if I ever smell a mouldy one again. That PICC line (which I couldn’t imagine having inside me and then couldn’t imagine having out) has a lot to answer for.

9) There are women walking around with magnets in their knickers: yes, if you see a lady attaching herself to a supermarket trolley or opening a drawer with her pants, do not fear. She is probably just fed up of the hell that is the hot flush and desperate for a solution. For the record, it didn’t work for me so no need to keep me away from filing cabinets.

10) Boobs are pretty unexciting: breasts, boobs, jugs, melons, cupcakes and mounds. This year, I have seen (and spoken about) the lot and I have to tell you, they are not all they are cracked up to be. While I will always have a soft spot for my man-made mound, I have started to see boobs less as sexy body bits and more as mundane fleshy lumps. That doesn’t mean I will be stripping off at every available opportunity.

You certainly can’t say the last nine months have been boring. I would say they’ve been anything but.

Question is, knowing what I know now, will life ever be the same again? And, would I want it to be?

Breast cancer lesson 148: Life is too short to save things for best

This morning, a rather surprising reminder popped up on my Blackberry alongside the ‘Take Clonidine’ and ‘rub in Doublebase’ requests. All it said was: ‘life is too short to save anything for best’. Quite why I thought to write it down and deliver it myself on this particular day, I will never know. But, I’m really glad I did.

Engaging with my possessions is something I’ve been doing a lot more of this year. I, like a lot of people in the world, have a tendency to put certain things in a ‘best’ category. And, when they achieve this coveted position, they are pretty much never seen again.

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Why is it I have immaculate-looking pans, but always default back to my university pan with dodgy handle and food-encrusted bottom? (Quite what masterpiece I think I’ll be rustling up, I’ll never know.) Why is it that tops I buy after dreaming about them for weeks are carefully preserved in my wardrobe? (I’m not sure my wardrobe appreciates them quite as much as I do.) Why is it that special stationery is always too special for my ideas? Why is it that hand cream seems like an essential purchase at the time even when I feel like I need a special occasion to use it? And, why is it that when a meal is deemed good enough to repeat, it gets popped in the recipe tin and somehow forgotten about? (I always seem to focus on new meals rather than old favourites.)

Why indeed! This year I have come to realise that there’s no point saving things for a special occasion, because that special occasion may never come. And, the trouble with the word ‘best’ is, you can rarely spot a ‘best’ moment because it is almost impossible to define. Saying ‘best’ takes away the hope of there being something better in the future.

I have come to the conclusion, as explained by the recent reintroduction of my school-time favourite fountain pen to my life, if you want a good day to be great, why not start by filling it with your favourite things? When I discovered the pen the other day while rummaging through my bedside table, I remember thinking to myself how much I used to enjoy writing with it. And, then I thought, if I love it so much, why am I not writing with it every single day. Before I knew it, I was popping in a fresh cartridge (from about the year 2000) and giving my writing finger back its old inky smudge. Before I knew it, I was smiling while writing the word ‘bleach’ on the supermarket shopping list.

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A special occasion isn’t something you wait for, it’s something you have to create – not just once in a while, but everyday. (Just to clarify, writing the word bleach is not a stand out moment in my life – things aren’t that bad!)

I remember a friend once telling me that she always wears good (and matching) knickers and bras just in case something happens to her and she ends up in hospital unexpectedly. Now, this might seem slightly macabre, but I like her thinking. Of course, at the moment, hospital trips are not unexpected for me and, I think that If I do end up in one unexpectedly, I won’t particularly care about the colour of my knickers and whether they match my bra (when you are used to a nurse pulling up your magic pants, it would seem strange to suddenly adopt such a view). And, I really would have to invest to be so co-ordinated. What I like is the idea that matching underwear actually means something to her. And, by wearing it every day, she is celebrating that fact every day.

So whatever it is (pants, socks, pens, notebooks or even glasses), I challenge you to stop thinking that the best is yet to come, and start bringing a bit of your best into daily life. If you’re waiting for that moment, chances are you’ll never get it. And, if you aren’t, who knows what doors will open for you when you’ve injected a little more happiness into your day? Please do post and share your favourite things. I won’t be posting a pic of my favourite knickers, but I can tell you I have a ‘best’ mug, cup, pen, pan and notebook (for starters). I even have ‘best’ marigolds!

I’m off to drink tea out of a special mug, eat my special chutney before it goes off and write on the first page of a special notebook (that’s about six years old). All while wearing a special top. Daring I know!

As a quick aside, radiotherapy is still ongoing. Amusingly, while writing this post in the waiting room, I heard my name being mentioned by the radio team. All I could hear was fragments, but I got ‘she’s the young one’ and ‘why don’t you just ask her?’. At that point, I started imagining what they might be thinking. Would I have to demonstrate something? Would I have to take my top off for somebody else? Would I be bumped down the list?

About five minutes later, I was greeted by a friendly lady who asked whether I would mind changing one of my appointment times to 8.30am. She thought she was asking a lot, so she was delighted when I reacted like I’d just won the lottery. Being called ‘the’ young one, however, reminded me just how few of us ‘young ones’ there are (thank goodness). I am happy to be the odd one out, but I’d rather be known as the smiley one who always seems happy when she’s writing with her very nice fountain pen :-).

Breast cancer lesson 147: Why I won’t complain about knotted hair again

One thing I really miss about having no hair is the hairdresser’s chair. I don’t miss the expense, or the fact I don’t have much glamorous chat (although I can hold my own when it comes to the latest on X Factor). I just miss the me time, the head massage while I’m having my hair washed, the ‘just-stepped-out-of-the-salon-you’ll look-like-this-for-five-minutes’ effect and the fact that, for at least 40 minutes, my image is in someone else’s hands. (I also miss the tea, the biscuit and the chance to read issues of Heat and Hello).

In truth, I have actually been to the hairdresser once since my number two back in April (although even that did not count as a proper appointment). Duncan treated me to a trip to the barbers (for him to get his haircut I hasten to add) on the way to a wedding last month. I remember chuckling to myself as I watched Duncan get his 10 minute clip, thinking that even in a barbers, I had less hair than everyone else. Thank goodness I had my hat on, so that they couldn’t see my ‘baby-like baldie’ look. Needless to say, I won’t be accompanying him again any time soon. It wasn’t much of a date :-).

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I have discovered, however, that you don’t need a hairdresser to give your head a bit of pampering. You just need a ‘New’ bar from Lush. This red soap-like bar (that actually smells a bit like Christmas due to the cinnamon content) is apparently the answer to quicker hair growth. Whether or not it actually lengthens my locks remains to be seen, but it feels lovely to get lathered up and, with 80 washes per bar, it’s a pretty cost-effective pampering activity. I have heard that there are other shampoos that can prove useful in the hair growth department, so if you have had any success with a product, do let me know. I haven’t, however, heard of one that ensures your hair doesn’t grow back grey. It is hard to tell right now, but there is a lightness to it. Am hoping for blonde – or a good cut and colour before too long.

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Of course, the shampooing has made the fluff I call hair stand to attention a little bit more, so I am sporting a bit of a chicken look today. I have been told that it is best to go au naturel and leave the hats at home to help encourage growth, so London had a good look at the fluff today.

With its ‘first-shampooing since April’ moment, Sunday was another of those mini milestone days I have been keen to celebrate. I am sure it won’t be too long before I enjoy my first hairbrushing day and even my first haircut. Life seems to be flying by at the moment and the idea that active treatment will be over in two weeks amazes me.

On the subject of haircuts, now I have fluff, my thoughts have been turning to post-chemo cuts. I feel lucky that I actually like short hair and get to experiment with all the styles I have also avoided (through fear of hating them and not being able to stick the hair back on). When you’ve hot no hair, having something to call your own is pretty exciting – although I know I have many more months of the GI Jackie look before anything resembling a style makes its way onto my head.

The style I do fancy is something resembling the look Brody’s wife opts for midway through season one of Homeland (yes, I appreciate I am miles behind). It’s a pixie with a longer bit on top (click here for a quick peak). For now, it’s just a dream staring out at me from the TV screen. I can’t wait for the day when I can call it – or something quite like it – my own! If you’ve seen something you think might suit me (here’s a quick reminder of the old Jackie look – or check out my a twitter handle, which is slightly more forgiving), please send me a link. When it comes to making a final decision, time is something I have on my side for once.

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Of course, what I am not missing is having another appointment in the diary – I have enough of those to keep me busy at the moment. It was back to the hospital today – via a wonderful lunch with an old friend I haven’t seen for about 14/15 years – for the next radiotherapy blast. Highlight of today’s speedy appointment was the moment when the technician said: ‘now, if you’d just like to lie like a big rock or something like that, this would be a lot easier.’ I know I had doughnuts for dessert, but a big rock?! Really?!

As an aside, if there is someone you haven’t contacted for a really long time, why not make September the month you get back in touch. As someone who is now saying thank you to all those who have touched my life over the last three decades, I highly recommend it. Now is the time to say what you mean and tell the people that matter just how valuable they are.

Back at home after blasting number five, there is only one thing I want to do – and that’s get the shampoo out again. Let’s hope all this washing doesn’t wash it off.

There’s one thing for certain, I won’t ever complain about knotted hair again.

 

Breast cancer lesson 146: Time flies when you’re having a blast

It seems like only yesterday I was lying down to face my first tattoos. Now, four radiotherapy treatments down and I have completed my first week. There’s nothing like a daily mid-afternoon date with the hospital to make those days disappear – and fast!

So what have I learned from these daily doses? Here’s a quick rundown:

1) Don’t forget your dressing gown belt: it may seem like an insignificant detail, but a dressing gown without a belt just means you will flash more people than is really necessary.
2) Turn it around: to preserve your dignity a little longer, wear your dressing gown the wrong way round. That way, when you lie down on the bed, the technicians only need to reveal the blast area.
3) You can wash those felt-tip pen marks off: thanks to all those who advised me of this. It does seem like they only need to play noughts and crosses on your boob at the first session though. It’s just been one mark ever since.
4) Doublebase cream is your friend: what I love about this twice-daily (at least) ritual is the fact that it forces me to do a bit of scar massage at the same time. Doublebase may look thick and gooey, but it is actually lovely on the skin. Creaming first thing and at night works for me (it has to be two hours before treatment so it has time to absorb).
5) Practise your best rag doll pose: Tempting as it is to help the technicians get you into the correct position, it is best to let yourself go heavy on the bed so they can get wiggling.
6) Arriving early for an appointment is no bad thing: while I have never been called before my slot, it is better to check in than kill time in the hospital foyer, so you are more likely to be seen on time.
7) Keep it loose: while it is still early days for the skin, I am already seeing the benefits of keeping your clothes loose to reduce friction. It’s also good to carry your handbag on the other shoulder.
8) Clear that diary: radiotherapy schedules do change. It’s day four and I am on my third timetable. While you can move things around, it is good to avoid anything that puts you under extra time pressure (especially if your treatment is taking place underground with zero reception).
9) Expect to be taped up…but only on the first appointment: there is more setup involved at the first treatment, so you may find you have wires taped to your boob. Photos are also taken daily for the first few appointments (in my case four) before going weekly. Things speed up when there’s no topless photo shoot involved!
10) Don’t forget to breathe: if, like me, you become fascinated by the way the laser moves across your skin when you breathe in, don’t try and stop it by holding your breath (although this may be different if treatment is to the left side close to the heart). As a friend pointed out, you then have to breathe deeper to catch up – therefore moving the laser even more.
11) Keep that jewellery to a minimum: the post-radio hunt round the handbag for the rings, bracelet, watch and earrings keeps me in the changing cubicle for so long, I am convinced they must think I don’t know how to dress myself.
12) Pack that radio bag – and leave it that way: one foolproof way to remember your dressing gown (and belt), radiotherapy cloth, good book and appointment card, is to keep it together in a bag and leave it by the front door. Avoids all that last minute rushing too (unless, like me, you have sourdough bread in the oven that refuses to go brown)!

If reading this list makes you feel exhausted, you’ll appreciate just how significant the latest developments in radiotherapy treatment really are. In July, news reports applauded the introduction of intrabeam radiotherapy, which is administered at the time of breast surgery when the tumour is being removed. While I believe it can only be used when the tumour is contained within the breast tissue with no further spread, if this becomes standard practice, it could transform the lives of those going through treatment. As much as I admire and love my hospital for all it has done for me, I think daily visits are a little too much.

Four days in and I have my routine. Just 11 sessions left to go until the end of active treatment! Woohoo!

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