It really is hard to explain quite how excited I am right now. You might think this strange given it is the evening before my next 10k (that means an early night and no Saturday wine), my skin is starting to look very angry and I have just discovered that the loss of sensation and general tingling feeling in my hands and feet (otherwise known as peripheral neuropathy) might be here to stay for a good six months if yesterday’s review meeting is anything to go by. But, just knowing that I have two massive finish lines to cross over the next two days makes me very happy indeed.
I confess, I had a slight blip yesterday at my review meeting. After joking with the team doing the treatment for the day, I was ushered into a room to talk through aftercare following my last blast. It started well due to the fact I was dressed in a complicated top that took me ages to get off while I was trying to hold a sensible conversation. (I just had to laugh in the end as the surreptitious tugging on the sleeves to try and get them over my hands just didn’t work.) Once out of my top, we talked creams (you need to keep the Doublebase going for as long as you have symptoms and for at least two weeks), swimming (seems I might be able to take my first swim in a month if the skin holds), peripheral neuropathy (it seems I still have no one to talk to about this currently and it might be here to stay), Tamoxifen (as I haven’t been consented for this yet, no one in the department can prescribe the drug for me, so I have a few weeks reprieve before the 10-year course begins) and the 10k (she has given me some medical cling film to attach to my boob and under my arm to prevent the friction from causing my skin to fall off).
Then, she mentioned the future. For the first time, a medical professional was sat in front of me telling me this was the end. There would be no more frequent appointments to make me feel like I am fighting any rogue cancer gremlins in my body. There will be no one close by if I have a ‘what if’ wobble. From Monday, I will be just another hospital number on the system, already replaced with another patient starting their journey. I should have been jumping for joy. Instead, when someone is looking across at you with tears in their eyes telling you it’s ok to cry, I felt a little sad. It wasn’t a lasting sadness (I welled up a bit but recovered well), just a realisation that the protective bubble of surgeons, nurses and doctors is about to burst. And, it won’t be long before I will be left alone to face the future, with just a packet of pills for company.
The thing is, I know I’m ready for the future. I am excited about the future. I am strong enough to face the future. And, I know I will never be alone, thanks to the sheer volume of amazing people around me. I am also delighted to be giving waiting rooms a wide berth for a few weeks at least. I guess I just wish this appointment had been less about uncertainty and sadness and more about congratulating me on a job well done. I would have preferred an ‘I did it’ sticker, a pat on the back and a big smile rather than a reminder that the end is not really the end and that the road ahead could actually turn out to be a little bumpy.
The way I am choosing to say goodbye to active treatment and hello to a cancer-free life, however, doesn’t require a consulting room. Firstly, given there won’t be fireworks or even a lolly or star sticker from the hospital (and it is a Monday as well, which makes it feel even less special), I have taken it upon myself to mark the occasion with an end-of-active-treatment present to self. I have heard of people buying shoes, bags and cars to celebrate the fact they are being allowed to get off the cancer conveyor belt, but I have opted for something practical and meaningful to me: a decent pair of trainers.
I am not sure my old pair should have really been taken round the block, let alone the streets of London in July. So, I promised myself, if I made it across that finish line, I would get a pair that wouldn’t break my feet. I bought them a month or so ago to break them in before the big race tomorrow and I do feel I have been bouncing rather than jogging around the park of late. When I put them on, I feel like I am giving my feet a big hug – and that’s got to be a good thing.
The buying of running shoes is also quite significant for me. Running deserves its very own chapter in my cancer story. Anyone who has ever taken to the road (park, trail, path etc) will know that indescribable rush that comes with completing a run/jog/walk. It is that feeling that has helped me greet each day with a smile. And, it is that feeling I want to carry with me forever. I believe a run can change a day for the better. And, my future is all about having a better life. I never thought my hips and the toxic drugs in my body would ever let me be a runner. I am so grateful to my body for giving me that chance.
These shoes are also a reminder that whatever finish line it is you need to cross, you will get there. But, you should focus on making the journey as comfortable as possible, so you enjoy every step of the way.
Tomorrow, the aim is to 1) finish in one piece with cling film in tact and skin and nails still on 2) Raise money for the amazing charity Coppafeel 3) celebrate the end of cancer and the beginning of a healthier life with friends 4) shave even one second off the chemo run time and 5) cross the finish line with a big smile on my face. If you’d still like to pledge to buy me a drink to celebrate the end of active treatment (for each pledge I get I will donate to charity) or sponsor me, please post here!
When I cross that finish line tomorrow I cross it for everyone who has joined me on this journey. This serious illness may have tested me to the limit, but I think I will always look back on this time as one incredible ride.
All I need now is an early night and then a bit of banana fuel in the morning!
Wherever you are in the world, I hope you’ll be cheering us (by which I mean, Duncan, Fran and Sam) on!
As an aside, I will leave you with a rather amusing exchange with the shop assistant at the local supermarket a moment ago (on my mission for bananas). It went a bit like this:
Assistant: ‘How are you doing?’
Me: ‘Really well thanks’
Assistant: ‘And, how is your day going?
Me: ‘I am having a good day. Thanks for asking’
Assistant: ‘But, you do have a disease right?’ [points to lack of hair]
Me: ‘Ah yes, that would be cancer treatment. Nearly over now.’
Assistant: ‘I knew it! You’re a star.’
Seems I can’t even buy my magic running-fuel bananas in peace!
3 thoughts on “Breast cancer lesson 153: The race to the finish is on!”
Like you, I’ve come through cancer, chemo and radiotherapy treatments. I also have de-sensitised feet and finger tips thanks to Tax, but two years down the line it’s now unlikely to get any better, though my oncologist says ‘never say never’. In the meantime, I keep walking my dog in the hope that I may one day actually be able to feel where I’m putting my feet! (At least I’m still here to whinge about it!)
Congratulations on completing your treatment and having such a positive attitude to everything. I only came across your blog recently, but have enjoyed it immensely. I will just say that it feels a little bit odd to realise that you don’t have any medical appointments and can actually do pretty much anything you want to again, but it’s so….. liberating.
Thanks for sharing your journey; I’m sure that it has helped others who are still on this incredible road we have to take to recovery. Stay strong.
Thanks Lynda for your kind message. Lovely to hear you’ve enjoyed reading the blog, although sorry you have had a cancer journey of your own and are having ‘Tax’ issues! May they disappear one day, so that you can enjoy your dog walking even more. Take care, Jackie
God bless you , I’m be finishing mine on Friday xxxx