Breast cancer lesson number 61: Great care comes from people, not bricks and mortar

‘Never judge a book by its cover’ is a phrase that could easily apply to hospitals. With perfectly painted walls and shiny equipment often comes an expectation that the care will somehow be better. But, the truth is, when it comes to treatment, it’s the person administering it (and of course the treatment itself), and not the room in which it is administered, that really matters.

Don’t get me wrong. I smiled when I saw the comfortable chemo recliner chairs (although I never did work out how to put my feet up) and the bright cancer day unit suite with its great views. And, I’m not sure standing room only is the right look for a cancer clinic. But, when I think back over my time in hospitals over the years, it’s not the flashy equipment or the chipped paintwork I remember. It’s the people – and usually the ones that have made me smile.

It was my faith in the team treating me that made me put people before private cover after my initial diagnosis. My Breast Care Nurse admitted that the only difference between private and NHS treatment for cancer was the environment and not the speed at which things happened. In fact, if I had called in my cover, there would have been a delay while the diagnostic tests were redone and the diagnosis reconfirmed. I liked my team, I liked the way they treated me, and the blend of kindness and humour that worked well with my temperament. I wasn’t going to trade that in for a private room and artwork on the walls. Looking back now, I know I couldn’t have made a better decision.

It’s not often I leave hospital with a huge smile on my face (just doesn’t feel appropriate on most visits). Today, however, I did. Admittedly, this was, in part, due to giant carrier bag of drugs I had managed to secure for myself at my oncology appointment to help control the side effects from chemotherapy (never before have I been so excited about getting mouthwash on prescription). But, it was really down to the kindness and care shown by those around me – from the smiling barista at the café to the warm receptionist at the Cancer Day Unit.

I started the day with an early-morning reflexology and aromatherapy massage session courtesy of Dimbleby Cancer Care, a free service designed to offer support and care for people living with cancer (be that patients or family members). I don’t think I have ever started the working week by being coaxed into a state of relaxation and covered in a thin layer of lavender oil. It was amazing as both a source of escapism and a chance to chat to the lovely lady rubbing my feet and back. Instead of lying back and closing my eyes, I quizzed her on everything from her nursing past to her experiences and downloaded all my latest recommendations (from bold beanies to PICC line covers). The best part? It wasn’t the wonderful scent of the oil, the free bolster cushion (for extra PICC line protection in bed) or the fact that my back knots almost melted under the pressure. It was the moment at which she said she thought I was an extraordinary person. I’m not sure my Monday mornings will ever be as soothing again.

An hour later, I was sat in front of another nurse experiencing the easiest blood test of my life thanks to my trusty PICC line. Little did I know when I sat down for my ten-minute appointment that we’d cover everything from her singing ambitions and band to her love of children’s medicine and shift-based work. It was nice to feel like I was chatting to an individual with hopes and dreams rather than a lady in a blue dress with yet another syringe of saline solution.

Next stop, the oncologist. Three weeks ago, he told me he would be behind me 110%. And, true to his word, he was. The appointment was less about having a nice chat and more about him furnishing me with the contents of a small pharmacy. With extra Domperidone (bye bye nausea), Zoladex, Corsodyl and Difflam, plus soluble paracetamol and codeine (to experiment with as a mouth rinse because he’d seen it work before), I feel ready to tackle chemo 2. Even the oncology receptionist wanted to add in a mouth ulcer-related recommendation when I popped back to get the prescription adjusted a few moments later.

Finally, there was the smiling man at the pharmacy desk. He took great delight in both booking me in early (while I popped back to the clinic to amend my prescription) so I wouldn’t have to wait, and then walking me through my medical goodie bag. Service with a smile is often hard to find in the capital, which makes the experience even more satisfying.

I couldn’t describe the contents of the oncology consulting room, the massage seat, the pharmacy or the blood test cubicle in any great detail. That’s not because I’m not observant. It’s because, when the care is brilliant, there really is nothing else to see.

So, if you ever find yourself looking up at a tired hospital block, think not of the peeling paintwork, but of the people inside willing you on. For when you close the consulting room door one last time, it will be the kindness of those caring for you – rather than the chair they sat on – that will stay with you forever.

Breast cancer lesson number nine: Some tears are worth crying

I’m one of life’s criers. I shed tears at a screening of Cool Runnings. I well up on hearing the heartfelt stories on Surprise Surprise and X Factor (yes, I do realise I have admitted this publically!). Even reading sentimental verses on birthday cards in shops is enough to set me off. In short, leaving the house without a packet of tissues is a daring act.

For a sensitive soul who wears her heart very much on her sleeve, I thought a cancer diagnosis would be my undoing (and shares in Kleenex, my pension pot). But, I must confess, beyond the odd epic wailing sessions (the boardroom at work being a particular highlight on day 4), I have shed very few tears about the unfair situation I now find myself in.  

In fact, most of my tears are due to the fact I have been truly touched and inspired by random acts of kindness, thoughtful gestures and supportive messages. These are tears worth crying in my book.

Read the news headlines, and you could be forgiven for thinking that the world is a pretty dark place, scarred by death, disaster and destruction. Scratch the surface, however, and you will discover that behind every sad story lies real beauty and tales of love that will move even the strongest person to tears. The truth is, the world is full of wonderful people – you just need to know where to look.

These wonderful people may not stop the presses, but there are so many reasons (too many for an entire blog, let alone one post) why they should. In my life right now, they are my front page and my headlines. They are the soundtrack to each day, filling up my heart and my Blackberry with the most humbling words and gestures.

Kindness takes many forms. It’s a cup of tea from a busy nurse. It’s a knowing smile from a stranger across a waiting room. It’s a thoughtful note left on my desk. It’s a touching email from someone I once helped. It’s reconnecting with an old friend. It’s a tip about wigs from a client. It’s a colleague who prints out a diagram demonstrating how a plane stays in the air (see lesson number four to see what I mean). It’s a plant with kind wishes from New Zealand. It’s a sleep CD. It’s a complete cancer care kit from teams at work – everything from an inflatable bath pillow to an overnight bag. It’s an offer of help. It’s a chemo care box from my kind soul, complete with words of encouragement. It’s cake and tea in plastic cups at Sketch (plus a pretty exciting excursion to the toilets). It’s a four and a half hour bus ride for a hospital appointment. It’s ice cream sundaes and smiles. It’s a coaster, roses, books and cookie cutters. It’s a ‘like’ and a ‘follow’ on social media. It’s an impromptu blood test (sorry Duncan). It’s a knitted teddy. It’s a knock on the door on a Saturday morning. It’s curry, cuticle cream and good chat. It’s research completed by a friend. It’s handmade bags for carrying my drains. It’s wine at lunch time. It’s chocolate and homemade treats to fatten me up. It’s a charity run – or two. It’s a never-ending list of kind acts that makes me feel happy to be alive – and ready to fight.

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Sorry cancer, in the face of such kindness and generosity, you don’t stand a chance. There are many memories from this phase that I hope will fade. There are others I will want to cling to forever – and take forward with me.

I am not sure I will ever be able to thank you all for the kindness you have shown me so far – and I haven’t even been anaesthetised yet! But, I am determined to focus on getting better, so I can spend the rest of my life trying.

So, this is my shout out to all the nice people in the world. If you’re reading this, that includes you. Thank you for being part of this chapter and for making me smile (when I am not crying about how amazing you are). You know who you are…

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