Breast cancer lesson number 94: How to get more from active treatment

Cancer treatment is like being signed up to run a marathon race with no training. In short, it hurts. But, just sometimes, days like today are sent along to remind us that there are plenty of pit stops along the way that are actually rather enjoyable. As long as you know how to find them that is – and make the most of them when you do!

On annual leave, you’ll usually find me tucked up in front of a log fire with a glass of wine or strolling along the Dorset Coast path. The UK is our oyster and we do our best to enjoy it. Today, however, I spent the day with my arms in the air for a really good cause.

While most of you were commuting to your desks, I was on my way to the wonderful Haven charity in Fulham to take part in an exercise video. By exercise video, I don’t mean raising a sweat (although I did have a few too many hot flushes). By exercise video, I mean a series of exercises designed to help those who have had lymph node surgery manage the risk of developing lymphoedema (or arm swelling). Ok, so it might be the world’s most sedentary exercise class and I am not about to give Nell McAndrew a run for her money. But that didn’t make it any less important.

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Although I don’t think I am destined for life in front of the camera (I dread to think what my exercise face looks like and I waffled a bit on my vox pop at the end), it was a really wonderful day. I met a fantastic team dedicated to getting the medical side just right and also informing people about the latest thinking surrounding lymphoedema. No longer are we supposed to rest our affected arms and wear preventative compression sleeves. Exercise (within your limits) is the answer to ensuring we all have a really good base from which to get on with daily life. Managing the risk of lymphoedema isn’t about focusing on what you shouldn’t do, it’s about making a few adjustments to life so that you can keep doing everything you love. Saunas may not be top of the list, but everything else is pretty much up for grabs.

I also met some pretty special ladies, all at different stages of their treatment. With their positive spirits and colourful characters they were great film buddies. It will certainly be interesting to see the final cut, that’s for sure. Don’t expect a screening!

Never did I think that three rounds into chemo, I would be described as the fit one. It’s also strange to think that my hairless self (albeit in a hat) will now be immortalised, a DVD reminder of the fact that even when chemo piles on the side effects, you can still come out smiling.

Amusingly, I got a few odd looks on the tube. It seems a cancer patient with a hair loss cap, jeans and a t-shirt presents no challenge to onlookers. Dress her in leggings, trainers and yoga tops and suddenly she becomes an enigma. An active sick person. Does she deserve a seat or a round of applause? After what feels like about a thousand arm raises, I think I’ll take the seat thanks.

The great thing about today is it doesn’t end there. I am just doing a quick dress change before making my way to ZSL London Zoo for a safari gala dinner.

Take that cancer!

Breast cancer lesson number 68: Don’t count the days until the end of active treatment. Make every day count.

This weekend I went for a run (although I guess jog/walk might be a more accurate statement). Ok, so I realise that in most households, this wouldn’t be headline news. But, if I tell you that, due to my hip, this is the first time in more than a decade that I’ve actually given my trainers more than just a light workout, you’ll see why it’s pretty significant. I’m slow, but at least I’m lapping everyone on the sofa.

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One of my biggest fears throughout this entire process is weight gain. I’ve been there. I’ve got the T-shirt. I gained more than a stone after hip surgery. And, I remember how much it hurt me when the clothes didn’t fit and the scales wouldn’t lie.

I went into chemotherapy with a body bruised from major surgery. Chemotherapy (contrary to popular opinion) does not tend to make you shed the pounds. The combination of steroids, appetite and fatigue-related side effects has led to people gaining stones not pounds. I say, not this time. The side effects have been kind so far, so I am taking advantage. Cancer already messed up my wardrobe once, and once is enough.

I am, however, not just running to keep the weight off. Every post-surgery recovery step I take is a step with a purpose. On Sunday 13 July I will be dragging my PICC line and my wonderful fiancée around the streets of London to raise money for Breast Cancer Care. Yes, it’s just 10k. Yes, it might sound more like a sightseeing tour than a serious race. But, for someone with a hip full of metal and chemotherapy drugs coursing through her veins (I will be 5 cycles in by race day) this is my iron man.

I am not a runner, but I am determined to give it my best shot to raise funds for a charity that has not just provided the literature to help me make informed decisions about my treatment but also given me the confidence to smile through hair loss. They have already done so much for me and I don’t want to wait until the end of active treatment to do something for them.

This charity – along with two school friends who reconnected with me earlier this year and are running the muddy version of the Race for Life to help fight cancer – is my inspiration.

Why run if I am not a runner? Running is my nemesis. Growing up I was teased for the way I walk (a walk I still have). In my twenties, I was worried I’d never run again when my leg started to fail me. I entered this race in 2006, but my hip pain meant I never made the starting line. If pain has done anything for me, it has made me a fighter. I will fight every step of this course for every person who has battled cancer and for every person with hip problems that can’t run the distance. This time, only the finish line will do. It won’t be fast. It won’t be graceful. It will hurt. But, if I can smile through eight months of cancer treatment, I can smile through this.

So, whether you can donate a few pounds, fancy coming to London on race day to cheer us on or feel like running the course too, I would be so grateful for any support. Click here for Justgiving page link if you’d like to donate or send me an email on jackie_scully@hotmail.com if you’d like to get involved on race day. Thank you from the bottom of my heart.

Together we can help more people smile through cancer.